Exactly the questions I asked the gal on the phone which she had no answer for. When she couldn't answer my questions, I asked her for the name of the person in charge of all the clinical research studies at UCSD and she gave me two names and their phone numbers - Anthony Magit, M.D. Director UCSD Human Research Protections Program and a…
Exactly the questions I asked the gal on the phone which she had no answer for. When she couldn't answer my questions, I asked her for the name of the person in charge of all the clinical research studies at UCSD and she gave me two names and their phone numbers - Anthony Magit, M.D. Director UCSD Human Research Protections Program and a person named Rodney who was in charge of the CITI program at UCSD. CITI stands for Collaborative Institutional Training Initiative, a program “dedicated to serving the training needs of colleges and universities, healthcare institutions, technology and research organizations, and governmental agencies, as they foster integrity and professional advancement of their learners.”
I called Anthony Magit and told him I discovered I was enrolled in a clinical research study that I never enrolled in and gave him my clinical research study ID number that I got straight from the IRB department at UCSD. I asked him for the name of the clinical research study and asked him how I became enrolled in a clinical research study that I never signed up for. He said he would look into it and call me back. After a couple of days I called him back and he told me that if I didn’t know the name of the clinical research study I was enrolled in then he couldn’t tell me. I asked how that could be – I gave him my clinical research study ID number along with all my personal information and since he was in charge of all the clinical research studies how could he not know the name of the study I was enrolled in and how I became enrolled in it. His answer was the same, “If you didn’t know the name of the clinical research study you’re enrolled in than I can’t tell you.” He was more interested in knowing how I found out I was enrolled in a clinical research study.
I called Rodney the head of the CITI program at UCSD and he told me the same thing – If I didn’t know the name of the clinical research study I was enrolled in than he couldn’t tell me.
And that is when my whole world view sank to the bottom of the ocean floor.
Yeah, it is wild and horrifying. So, I made an appointment with psychiatrist because I thought maybe psychiatrist would have shred of empathy and point me in a direction I could go to that would get me off this clinical research study that I never enrolled in. I've never seen or talked to a psychiatrist or a psychologist in my entire life. That was that a bad idea and from personal experience I wouldn't recommend going to a psychiatrist or a psychologist in this day and age.
He said he thought I was paranoid. I said, "why do you think I'm paranoid?" He said, "because I don't have any paperwork to show him." I just stood up and thanked him for his time and politely left.
Exactly the questions I asked the gal on the phone which she had no answer for. When she couldn't answer my questions, I asked her for the name of the person in charge of all the clinical research studies at UCSD and she gave me two names and their phone numbers - Anthony Magit, M.D. Director UCSD Human Research Protections Program and a person named Rodney who was in charge of the CITI program at UCSD. CITI stands for Collaborative Institutional Training Initiative, a program “dedicated to serving the training needs of colleges and universities, healthcare institutions, technology and research organizations, and governmental agencies, as they foster integrity and professional advancement of their learners.”
I called Anthony Magit and told him I discovered I was enrolled in a clinical research study that I never enrolled in and gave him my clinical research study ID number that I got straight from the IRB department at UCSD. I asked him for the name of the clinical research study and asked him how I became enrolled in a clinical research study that I never signed up for. He said he would look into it and call me back. After a couple of days I called him back and he told me that if I didn’t know the name of the clinical research study I was enrolled in then he couldn’t tell me. I asked how that could be – I gave him my clinical research study ID number along with all my personal information and since he was in charge of all the clinical research studies how could he not know the name of the study I was enrolled in and how I became enrolled in it. His answer was the same, “If you didn’t know the name of the clinical research study you’re enrolled in than I can’t tell you.” He was more interested in knowing how I found out I was enrolled in a clinical research study.
I called Rodney the head of the CITI program at UCSD and he told me the same thing – If I didn’t know the name of the clinical research study I was enrolled in than he couldn’t tell me.
And that is when my whole world view sank to the bottom of the ocean floor.
This is terrifying.
That's wild and horrifying.
Yeah, it is wild and horrifying. So, I made an appointment with psychiatrist because I thought maybe psychiatrist would have shred of empathy and point me in a direction I could go to that would get me off this clinical research study that I never enrolled in. I've never seen or talked to a psychiatrist or a psychologist in my entire life. That was that a bad idea and from personal experience I wouldn't recommend going to a psychiatrist or a psychologist in this day and age.
He said he thought I was paranoid. I said, "why do you think I'm paranoid?" He said, "because I don't have any paperwork to show him." I just stood up and thanked him for his time and politely left.
Psychiatry is a disaster. I'm sorry for what you went through.
Thank you, I'm still going through it.