Your story resonates with me. After a TDAP my arm became acutely sore. The pain moved into my eyes and I had significant visual loss, as well as brain fog, acoustic sensitivities etc. Dr Tennant in Dallas Texas has a bio modulator that I used to regain my vision. He was after mitochondrial dysfunction in 2011. Research his site as his story will resonate with you as well.
I do believe many have chronic Lyme and the tests are made poorly enough to not diagnose anything they are poisoning us with. I also agree with JFK Jr that vaccines are the vector.
You also cannot build or energize cells without proper nutrition which is near impossible to enjoy these days.
Many blessings to you, I enjoy your writing on my chronic quest for survival.
My energy has returned with glitches if i get lazy in maintenance.
Same story, different 'disease/ syndrome.' Mine is caused by TDAP and a 'silver' (mercury and lead poisoning) filling removal. Like you, it's been decades. Many things help but nothing completely. Last few months I've been doing 72 hour juice fasts about once a month and I think it's improved my health more than anything prior. Fasting induces autophagy (self eating of damaged cells and gives your body a rest from digestion so it can repair itself). The (veg and some fruit) juice provides abundant vitamins and minerals. I'm hopeful. Maybe it will help you too. Blessings to you.
hey Toby, have you heard about red light & infrared therapy? I found out about it in Norman Doidge's amazing book "the Brain's Way of Healing Itself". Since you're such a big reader, check out the chapter about light therapy and see if it sounds interesting to you. hope it helps
You really nailed it with these couple of paragraphs: "Regular 40 hour jobs are impossible...Friends are curious for about 6 months and then life intervenes...Family sticks around for about a year...Dating is nearly impossible..."
I have been there. Though I was very lucky that I had a couple of friends who did stick around.
I did substantially (though not completely) recover and I'm still not sure how or why, other than rest and Pilates! (I too spent a lot of time, money and precious energy pursuing all different treatments. I appreciate the 'alternative' practitioners for at least listening to me and believing me, unlike mainstream medicine which predominantly gaslit me. But the alternative practitioner's approaches didn't work either.)
Quite some years later I had another crash, though somewhat different. Significantly more neurological involvement than physical. In fact, I didn't even realise how bad I was until I very recently started slowly coming out of it. I wasn't even seeking 'treatment' for it! - I was working on addressing my food sensitivities and intolerances after reading Fibre Fuelled by Dr Will Bulsiewicz and discovering I could do something them. This was through a range of approaches, and to my (welcome) surprise, a year later, I've gained a myriad other improvements. (I now suspect COVID vax... the health practitioner who has been supporting me led me here...)
Anyway, just to say, I hear you and see you. I hope each day you are able to find something, however small, that nourishes your soul. Brings you some solace.
And thanks for all your work. No doubt challenging to get done in between your "full time job" of living with chronic pain and illness.
Toby, sounds like you could have a severe overgrowh of candida albicans & other types in your body. It's at epidemic proportions and MDs usually don't have a clue (and that's no accident) ... .It can cause severe chronic fatigue like you're describing if left unchecked; also various other maladies. Feeding on sugar and caffeine is the worst for this as are most grains , sugars, dairy, alcohol, etc. as yeast feeds and reproduces on sugars. Here are some links to check out, but you may also be interested in reading Lee Know's Book Mitochondria and the Future of Medicine . Mitochondria are the factories where energy is produced as you already know now. And the processes involved in this can be helped with certain supplements like CoEnzme Q 10 , and better Ubiquinone . Lack of glutathione is said to be a major factor in mitochondrial dysfunction.
Here's Dr. Jockers. and more.... I'd recommend him and anyone working in Functional Medicine. (stay away from pubmed and all the standard Allopathic links for now.. stay with individual doctors, naturopaths etc. Also , fasting will heal just about anything ... A three to 10 day fast will help reset your whole system..it triggers the production of new stem cells.
. These guys recommend starting with intermittent..
I have CFS/ME. When I finally got out of bed, I walked to the door. The next day I took a few more steps. A few days later I was able to go downstairs and back up. Each day I added a few more meters to my walk, until, very gradually, I was able to walk up a hill. Then I left the city. Gentle, gradual exercise and removal of chemical/EMF toxins does provide a way out. I still walk up a hill every day... going dancing tonight.
Dear Dr Rogers … thank you for sharing the challenges of your personal journey. I wonder if you’ve heard of Dr Sandra Rose Michael, inventor of EESystem technology. There are many EE (energy enhancement) centres in the US now. It’s a technology that has the ability to reset your DNA and recharge your body’s cells, bringing your body back to its natural ability to heal itself. There are many interviews with Dr Michael on YouTube, one even talking about the technology’s ability to reverse radiation damage. I have recently opened an EESystem Center in Nuevo Vallarta, MX and witnessing some amazing healing among my clients. I would really encourage you to research this technology as I believe it could really help you and others like you, suffering from the same disease. www.unifydhealing.com for locations near you. God bless you!
Maybe this explains why your work resonates with me so much! I also have me/cfs/fm, and also didn’t have a name for it for years. The kickoff for me was clear, tho. I was sick with a stomach virus (“24-hour bug”). The virus passed with some puking, no big deal, really.
Within 24 hours I developed back pain, the likes of which I’d never experienced prior. It was spastic, so I’d be asleep and a spasm of pain literally shook me out of bed. I was afraid I’d damaged my spinal cord, or that I had a kidney infection. It had to be something major b/c the pain was so intense and specific. Well...I’m gonna make a very long story short: it took months of illness and dramatic ER visits, then an ambulance trip. Prolly a dozen visits total. By the time I was dx’d I had DVTs and jaundice/liver dysfunction (this was what got them to take me seriously).
I had an infection in my spine that they speculate resulted from “discitis” which is when the discs get inflamed, if not treated they can get infected and that infection can spread to bones which is what happened (stressing that this speculation here). I spent a total of 4 months in the hospital with this, and THEN went thru more medical gaslighting and mistreatment when the pain, fatigue, and brain fog never went away. Friends and family (at the time) also thought I was malingering...anyway...divorce...move to FL and just happen to luck into finding a doc who understood what I have. I’d totally given up, 3 YEARS after the infection. I didn’t even present the overall picture to her, I’d just gone to get help with migraines. She put it all together from my pt history.
My doc’s assistance is the ONLY reason I currently I have a life to live. I was able to date, re-marry. Even able to work a regular job for awhile, which in my career mean high stress, long hours, lots of brain work. It eventually made me sick again.
I credit Hillary Johnson’s book, along with my prior understanding of US bioweapons development (“peace studies” in college), with my early skepticism of covid, and being able to get everything right—even as a lefty, and predicted that long covid is actually me/cfs.
How did I miss this? I read your work as I value your opinion. You mentioned all the modalities you tried but I did not see NAET listed. It is an allergy elimination technique that I found very helpful for a chronic skin condition. The final resolution for this “incurable” condition was turning off all EMR in my home. It was always the two steps forward and one back until I did that. You can ask if they have had success with your condition at info@naet.com. Dr Roy Nambudripad is the son of the inventor of NAET, also an MD and he will likely be the one answering. In my area there is a practitioner who charges $35 a visit and the guest room here is always available.
Hi Toby, i encourage you to go to Amazon and get a book called "A More Excellent Way" by the late pastor Henry Wright. It is a book about what the Bible has to say about healing. Pastor Wright's church in Georgia still puts on a week-long retreat called For My Life, in which they teach the principles from the book. I've been (for a different illness) and it totally changed my life. I'm not exaggerating. That's why I enthusiastically recommended it to others. People come from all over the United States and even from other places in the world to this week of teaching and pretty much all of them are excited about what they've learned and what happened to them over the week.
Beinhealth.com Look at the "For My Life" section for info on the retreat
Here is a lady who used to have chronic fatigue syndrome and some other illnesses,But she doesn't have CFS anymore:
I’m sorry you’ve been dealing with this for so long. Have you heard of LDN—low dose Naltrexone? It has made a huge difference with my pain. You start low and slow and take it in the morning to avoid sleep issues.
Your story resonates with me. After a TDAP my arm became acutely sore. The pain moved into my eyes and I had significant visual loss, as well as brain fog, acoustic sensitivities etc. Dr Tennant in Dallas Texas has a bio modulator that I used to regain my vision. He was after mitochondrial dysfunction in 2011. Research his site as his story will resonate with you as well.
I do believe many have chronic Lyme and the tests are made poorly enough to not diagnose anything they are poisoning us with. I also agree with JFK Jr that vaccines are the vector.
You also cannot build or energize cells without proper nutrition which is near impossible to enjoy these days.
Many blessings to you, I enjoy your writing on my chronic quest for survival.
My energy has returned with glitches if i get lazy in maintenance.
Same story, different 'disease/ syndrome.' Mine is caused by TDAP and a 'silver' (mercury and lead poisoning) filling removal. Like you, it's been decades. Many things help but nothing completely. Last few months I've been doing 72 hour juice fasts about once a month and I think it's improved my health more than anything prior. Fasting induces autophagy (self eating of damaged cells and gives your body a rest from digestion so it can repair itself). The (veg and some fruit) juice provides abundant vitamins and minerals. I'm hopeful. Maybe it will help you too. Blessings to you.
hey Toby, have you heard about red light & infrared therapy? I found out about it in Norman Doidge's amazing book "the Brain's Way of Healing Itself". Since you're such a big reader, check out the chapter about light therapy and see if it sounds interesting to you. hope it helps
I recently started doing red light therapy and I like it a lot.
So sorry to hear this Toby.
You really nailed it with these couple of paragraphs: "Regular 40 hour jobs are impossible...Friends are curious for about 6 months and then life intervenes...Family sticks around for about a year...Dating is nearly impossible..."
I have been there. Though I was very lucky that I had a couple of friends who did stick around.
I did substantially (though not completely) recover and I'm still not sure how or why, other than rest and Pilates! (I too spent a lot of time, money and precious energy pursuing all different treatments. I appreciate the 'alternative' practitioners for at least listening to me and believing me, unlike mainstream medicine which predominantly gaslit me. But the alternative practitioner's approaches didn't work either.)
Quite some years later I had another crash, though somewhat different. Significantly more neurological involvement than physical. In fact, I didn't even realise how bad I was until I very recently started slowly coming out of it. I wasn't even seeking 'treatment' for it! - I was working on addressing my food sensitivities and intolerances after reading Fibre Fuelled by Dr Will Bulsiewicz and discovering I could do something them. This was through a range of approaches, and to my (welcome) surprise, a year later, I've gained a myriad other improvements. (I now suspect COVID vax... the health practitioner who has been supporting me led me here...)
Anyway, just to say, I hear you and see you. I hope each day you are able to find something, however small, that nourishes your soul. Brings you some solace.
And thanks for all your work. No doubt challenging to get done in between your "full time job" of living with chronic pain and illness.
All the best
❤️
Toby, sounds like you could have a severe overgrowh of candida albicans & other types in your body. It's at epidemic proportions and MDs usually don't have a clue (and that's no accident) ... .It can cause severe chronic fatigue like you're describing if left unchecked; also various other maladies. Feeding on sugar and caffeine is the worst for this as are most grains , sugars, dairy, alcohol, etc. as yeast feeds and reproduces on sugars. Here are some links to check out, but you may also be interested in reading Lee Know's Book Mitochondria and the Future of Medicine . Mitochondria are the factories where energy is produced as you already know now. And the processes involved in this can be helped with certain supplements like CoEnzme Q 10 , and better Ubiquinone . Lack of glutathione is said to be a major factor in mitochondrial dysfunction.
Here's Dr. Jockers. and more.... I'd recommend him and anyone working in Functional Medicine. (stay away from pubmed and all the standard Allopathic links for now.. stay with individual doctors, naturopaths etc. Also , fasting will heal just about anything ... A three to 10 day fast will help reset your whole system..it triggers the production of new stem cells.
. These guys recommend starting with intermittent..
https://www.ifm.org/news-insights/fasting-mitochondrial-health/
https://drjockers.com/heal-candida-naturally/
Book : Living Candida Free - Ricki Heller
Dr. Joseph Mercola for supplements..file:///Users/user/Desktop/mitochondria-supplements-pdf.pdf
Dr. Peter Kan has a lot of knowledge about gut health , and how it impacts every other system.
https://www.amymyersmd.com/article/anti-candida-foods
All the best
Toby, I'm only reading this post today, due to you linking to it in your most recent.
I happen to be reading this mitochondria article at the moment, and pass it along in the hope you find it useful.
Cheers and keep fighting!
https://www.sens.org/sens-versus-parkinsons/
I'm so sorry to hear you've suffered with this, Toby, for all these years.
Thank you for this information. Fascinating and makes so much sense!
I have CFS/ME. When I finally got out of bed, I walked to the door. The next day I took a few more steps. A few days later I was able to go downstairs and back up. Each day I added a few more meters to my walk, until, very gradually, I was able to walk up a hill. Then I left the city. Gentle, gradual exercise and removal of chemical/EMF toxins does provide a way out. I still walk up a hill every day... going dancing tonight.
Thank you for your intrepid work. I am cheering for your success.
Dear Dr Rogers … thank you for sharing the challenges of your personal journey. I wonder if you’ve heard of Dr Sandra Rose Michael, inventor of EESystem technology. There are many EE (energy enhancement) centres in the US now. It’s a technology that has the ability to reset your DNA and recharge your body’s cells, bringing your body back to its natural ability to heal itself. There are many interviews with Dr Michael on YouTube, one even talking about the technology’s ability to reverse radiation damage. I have recently opened an EESystem Center in Nuevo Vallarta, MX and witnessing some amazing healing among my clients. I would really encourage you to research this technology as I believe it could really help you and others like you, suffering from the same disease. www.unifydhealing.com for locations near you. God bless you!
Maybe this explains why your work resonates with me so much! I also have me/cfs/fm, and also didn’t have a name for it for years. The kickoff for me was clear, tho. I was sick with a stomach virus (“24-hour bug”). The virus passed with some puking, no big deal, really.
Within 24 hours I developed back pain, the likes of which I’d never experienced prior. It was spastic, so I’d be asleep and a spasm of pain literally shook me out of bed. I was afraid I’d damaged my spinal cord, or that I had a kidney infection. It had to be something major b/c the pain was so intense and specific. Well...I’m gonna make a very long story short: it took months of illness and dramatic ER visits, then an ambulance trip. Prolly a dozen visits total. By the time I was dx’d I had DVTs and jaundice/liver dysfunction (this was what got them to take me seriously).
I had an infection in my spine that they speculate resulted from “discitis” which is when the discs get inflamed, if not treated they can get infected and that infection can spread to bones which is what happened (stressing that this speculation here). I spent a total of 4 months in the hospital with this, and THEN went thru more medical gaslighting and mistreatment when the pain, fatigue, and brain fog never went away. Friends and family (at the time) also thought I was malingering...anyway...divorce...move to FL and just happen to luck into finding a doc who understood what I have. I’d totally given up, 3 YEARS after the infection. I didn’t even present the overall picture to her, I’d just gone to get help with migraines. She put it all together from my pt history.
My doc’s assistance is the ONLY reason I currently I have a life to live. I was able to date, re-marry. Even able to work a regular job for awhile, which in my career mean high stress, long hours, lots of brain work. It eventually made me sick again.
I credit Hillary Johnson’s book, along with my prior understanding of US bioweapons development (“peace studies” in college), with my early skepticism of covid, and being able to get everything right—even as a lefty, and predicted that long covid is actually me/cfs.
This is what happened to me, only it happened much slower. I believe it was endothelial lining inflammation that set it all off for me, and for these poor ppl described by this doc: https://x.com/kacdnp91/status/1783459009766543730?s=61&t=jVDSyCMBfP5lErJeZhJV8Q
How did I miss this? I read your work as I value your opinion. You mentioned all the modalities you tried but I did not see NAET listed. It is an allergy elimination technique that I found very helpful for a chronic skin condition. The final resolution for this “incurable” condition was turning off all EMR in my home. It was always the two steps forward and one back until I did that. You can ask if they have had success with your condition at info@naet.com. Dr Roy Nambudripad is the son of the inventor of NAET, also an MD and he will likely be the one answering. In my area there is a practitioner who charges $35 a visit and the guest room here is always available.
Have you looked into teeth causing problems. Read or listen to Dr Thomas Levy.
Hi Toby, i encourage you to go to Amazon and get a book called "A More Excellent Way" by the late pastor Henry Wright. It is a book about what the Bible has to say about healing. Pastor Wright's church in Georgia still puts on a week-long retreat called For My Life, in which they teach the principles from the book. I've been (for a different illness) and it totally changed my life. I'm not exaggerating. That's why I enthusiastically recommended it to others. People come from all over the United States and even from other places in the world to this week of teaching and pretty much all of them are excited about what they've learned and what happened to them over the week.
Beinhealth.com Look at the "For My Life" section for info on the retreat
Here is a lady who used to have chronic fatigue syndrome and some other illnesses,But she doesn't have CFS anymore:
https://www.youtube.com/watch?v=utFuUYDkHtA
There's definitely hope! If you decide to go, I hope I can get an update. :-)
Please read the Medical Medium books. https://www.medicalmedium.com/
He has helped so many people with similar issues.
Love to you!
I’m sorry you’ve been dealing with this for so long. Have you heard of LDN—low dose Naltrexone? It has made a huge difference with my pain. You start low and slow and take it in the morning to avoid sleep issues.
I have some. I tried it and just couldn't tolerate it.